As the management of congenital heart disease has advanced there are more people than ever living with CHD. With the increased access to electronic medical records and the available information online many patients and families find themselves overwhelmed.
The PATCH Network is here to help you navigate everything related to CHD including understanding your condition and treatment, helping you find the care you need, or assisting you in finding and acquiring the benefits and resources you need. We want you to know you are not alone.
CHD is very complex and there is not a one-size-fits-all solution. What is the right decision for one may not be the right decision for the other. Team Uncle Joe is here to give you patient centered soultions to your unique challenges. We believe in helping you become a proactive and powerful voice for your care.
We believe that you have the right to choose the care you want and deserve. We are here to help you make an informed decision, by helping you to better understand your needs and what each decision has to offer for you. Armed with good information you can make a decision with confidence.
There is always a next move, be it getting back on your feet after open heart surgery, trying to transfer your medical care after a move, or deciding you want to be a more active and resourceful member of your healthcare team. Whatever your next move is we are here to help keep you moving forward.
At Johns Hopkins Medical Archives researching the beginings of Pediatric Cardiovascular Surgery
At C.S. Mott Children's Hospital in Ann Arbor, Michgan learning about the changing landscape of CHD mangement
At Texas Children's Hospital with Tenley Kennedy after recieving a heart transplant on May 10, 2017
March 16, 1982 when the journey with Tetralogy of Fallot began for Uncle Joe.
March 14, 2012 almost 30 years to the day since the journey began, Joe has his 4th Open Heart Surgery
Learning and advocating for myself and other with CHD at this amazing event and movement organized by the PCHA